Packing a lifetime’s worth of bucket list items into nine months might sound intimidating to most, but that didn’t stop Jenna and Dan Haley. Their unborn son Shane has been diagnosed with a complex neural defect that kills most infants soon after birth.
“Most families wait until their baby is born to start making memories and traveling to places with them,” Dan said. “We understood what it was and knew that our time with our son could be very limited, so we wanted to make the most of the time that we had with him.”
Anencephaly causes babies to be born without parts of the brain and skull. Many newborns with the condition die soon after birth. To the Haleys, that limited time is precious.
That’s where the idea for the “bucket list” came from. The Haleys came up with a list of places and activities they love and want to share with their son and vowed to do as many as possible during Jenna’s pregnancy. They have been updating family, friends and others on a Facebook page they created to log Shane’s adventures, and now more than 100,000 people are following along.